Thank you to all who contributed to the success of the NRBDO Comprehensive Care Conference 2017. 
The second red button below leads to summary notes as well as slide decks of the presentations. 

Comprehensive Care Conference
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Saturday, November 18, 2017
Sheraton Toronto Airport Hotel and Conference Centre, 801 Dixon Rd Toronto

When it comes to rare blood disorders, finding the balance between optimal patient care and efficient stewardship of healthcare dollars is a challenge felt by doctors, hospital administrators, and government officials alike.

Care models exist that offer cost-effective benefits to patients, hospitals, and governments.

This conference presents a growing body of evidence from both domestic and international clinics where innovative strategies are:

• improving patient and caregiver experiences and outcomes
• improving safety through tracking of product use
• increasing cost effectiveness
• resulting in shorter and fewer hospital stays 
• reducing product waste

Hereditary AngioEdema (HAE) and Primary Immunodeficiency (PID) are used as case studies, and rare bleeding disorder care models are explored.

​Conference Session Topics include:

• Best practices and innovative models of care delivery (both Canadian and international)
• National patient registries
• Collaboration strategies
• Systems to ensure access to care and therapies, including home care and transition from pediatric to adult care.

Confirmed speakers include:

• Dr. Marco Cicardi, speaking on HAE care in Italy
• Dr. Marc Reidl, speaking on HAE care in the USA
• Dr. Menaka Pai, speaking on the support for integrated care models
• Dr. Stephen Betschel, speaking on HAE progress in care in Canada
• Dr. Bruce Ritchie, speaking on the John Akabutu Comprehensive Care Centre in Edmonton

View conference program here

View summary notes and slide decks here

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