The NRBDO requests a review of the secondary restriction on the use of
​Solvent Detergent Plasma (SDP):
​Letter to National Advisory Committee on Blood and Blood Products - October 2018
​Letter to the Prov./Terr. Blood Liaison Committee - February 2017

Other Advocacy Positions & Letters:
Position Statement on Blood Product Distribution
Position Statement on MSM Deferral Policies (updated 2018)
Position Statement on a National Pharmacare Program

Letter to P/T MOH regarding consumer representatives on CBS board - March 2019
Letter in support of a move from a 1-yr to 3-month MSM deferral by CBS - December 2018
Letter to P/T Deputy Ministers of Health re: new blood product review process - June 2018
Letter to Innovative Medicines Canada re: travel reimbursement for medical professionals - June 2018
Questionnaire for Ontario Election Candidates - 2018
   Summary Report
Ontario Pre-budget Submission, advocating for Comprehensive Care - February 2018
Letter to CADTH requesting Path for Patient Input in Blood Product Reviews - January 2018
Letter to CADTH requesting Path for Patient Input in Blood Product Reviews - CBS cover - January 2018
Letter to CBS regarding product tender process and outcomes, from CSACI and AMMI Canada,
which the NRBDO also signed on to - December 2017
​Letter to the Federal Minister of Health in support of the Orphan Drug Framework - January 2016
Letter in support of a move from a 5-yr to 1-yr MSM deferral by CBS - November 2015 
     Press Release Announcing 1-yr deferral by the Minister of Health - June 2016
Letter in support of expanded newborn screening in Alberta - October 2015


Network of Rare Blood Disorder Organizations (NRBDO)/Réseau des Associations Vouées aux Troubles Sanguins Rares (RAVTSR)
​is incorporated under the Canada Not-For-Profit Organizations Act