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Interested in making a patient group submission to a CADTH Call for Patient Input? Consider using the NRBDO's patient survey template to collect valuable data from your members to inform and strengthen your submission. 

​These RARE Toolkits from Global Genes cover topics such as how to become an empowered patient, discussing genetic disease with loved ones, advocating for your child with a rare disease at school, leveraging a rare disease centre of excellence, and more.  

Kidney Cancer Canada has developed an excellent advocacy toolkit. We will be adapting it to be rare blood disorder-specific, but the principles are the same and this will be a great guide in the meantime for those interested in meeting with decision-makers and sharing your story via the media.
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Rare Disease Day is celebrated the last day of February each year, around the world, since 2008. Click here for more information, or click here to download a great selection of communication materials for both social and print media.

Canadian Blood Services has a Partners for Life Toolkit which is updated regularly, including images, suggested tweets and social media shares for our member groups, to promote blood and stem cell donation. 

TechSoup Canada can connect you to donated and discounted technologies through their technology donations program and provide valuable learning resources to equip you and your colleagues with technology tips and best practices - including Google for Non-Profits.

CanadaHelps is a powerful online giving platform for Canadian charities, offering instant receipting, campaign pages, and embedded donation forms for your website. You can also build event pages to sell tickets (with the receiptable portions done instantly) and fundraisers like walkathons, where each team can get their own unique page to share.