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Events.

2023 Meetings and Learning Series

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Webinar
From Pediatric to Adult Care: The Patient Group's Role in Advocating for and Supporting Transition Programs

March 21, 2023 | 7pm ET
REGISTER
Save the Dates
AGM & Member Check-In: April 1, 2023 (Virtual - Registration link sent to members)
Fall Forum: November 4-5, 2023 (Toronto and Hybrid)

Recent Events

2022 Virtual Meeting and Training Series

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Fall Forum
November 5-6, 2022 | Toronto/Hybrid
(RE)BOOT Camp
  • Presentations on Rebooting Member Engagement, Fundraising, and Storytelling
  • Partners For Life presentation with CBS
  • Advocacy & Member Updates
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Fall 2022 Training Series
September 20-22, 2022 | 7 pm ET
  • Training Webinar: Getting what you need: A guide to Patient Navigation
  • Training Webinar: Web Accessibility Made Easy for Nonprofits
  • Community Learning: Research Programs for Patient Groups: NRBDO member coffee chat
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Spring 2022 Training Series
March 9-10, 2022 | 7 pm ET
  • Training Webinar: Ask Me Anything with Canadian Blood Services CEO Dr. Graham Sher
  • Training Webinar: pCPA 101 and the Patient Group Role in CADTH Reconsiderations 

Virtual Spring Forum 
April 9, 2022 | 12-3pm ET
  • Our Annual General Meeting
  • Advocacy & Member Updates
  • Presentation/Discussion: Disability Justice

Network of Rare Blood Disorder Organizations (NRBDO)/Réseau des Associations Vouées aux Troubles Sanguins Rares (RAVTSR)
​is incorporated under the Canada Not-For-Profit Organizations Act
  • Home
  • About
  • Advocacy
    • Plasma
    • Newborn Screening
  • Events
    • Conference Presentations 2020
    • Conference Presentations 2017
  • Resources
  • Member Portal
  • Contact