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Events.

2026 Meetings and Learning Series

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Member organization representatives only: join us to learn more about MFN pricing, the implications of this policy, and the patient organization role in advocating to protect patient access to innovative therapies in this context. 
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Member organization representatives only: check email for registration details for the 2026 AGM. 
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2025 Meetings and Learning Series

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Point-of-Care Gene and Cell Therapy: An Opportunity For Canada. Deliberative Dialogue September 25, 2025, in Calgary. By invitation only. 
Co-hosted with Immunity Canada.

Diagnostics - NRBDO Member Chat
Tuesday, October 21st. 7pm ET.
​Virtual meeting on Zoom. 
Members only. 


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Fall Forum & Deliberative Dialogue, November 14 & 15, 2025, in Ottawa. By invitation only.

Recent Events

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2024 Meetings and Learning Series

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Fall Forum, Deliberative Dialogue, & 20th Anniversary Celebration, November 15 & 16, 2024, in Ottawa
2024 Virtual Learning Series: 
  • AI in Healthcare
  • Patient Organization - Pharma relationships and Ethics, with IMC
Spring Check-in & AGM, April 6, 2024, Virtual

2023 Meetings and Learning Series

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Fall Forum
November 3-4, 2023 in Ottawa/Hybrid
Access & Reimbursement for Next-Generation Therapies for Blood and Plasma Product Users
​Registration link sent to members. Others by invitation only.


AGM & Member Check-In 
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April 1, 2023 (Virtual - Registration link sent to members)

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Webinar
From Pediatric to Adult Care: The Patient Group's Role in Advocating for and Supporting Transition Programs

March 21, 2023 | 7pm ET
REGISTER

2022 Virtual Meeting and Training Series

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Fall Forum
November 5-6, 2022 | Toronto/Hybrid
(RE)BOOT Camp
  • Presentations on Rebooting Member Engagement, Fundraising, and Storytelling
  • Partners For Life presentation with CBS
  • Advocacy & Member Updates
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Fall 2022 Training Series
September 20-22, 2022 | 7 pm ET
  • Training Webinar: Getting what you need: A guide to Patient Navigation
  • Training Webinar: Web Accessibility Made Easy for Nonprofits
  • Community Learning: Research Programs for Patient Groups: NRBDO member coffee chat
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Spring 2022 Training Series
March 9-10, 2022 | 7 pm ET
  • Training Webinar: Ask Me Anything with Canadian Blood Services CEO Dr. Graham Sher
  • Training Webinar: pCPA 101 and the Patient Group Role in CADTH Reconsiderations 

Virtual Spring Forum 
April 9, 2022 | 12-3pm ET
  • Our Annual General Meeting
  • Advocacy & Member Updates
  • Presentation/Discussion: Disability Justice

Network of Rare Blood Disorder Organizations (NRBDO)/Réseau des Associations Vouées aux Troubles Sanguins Rares (RAVTSR)
​is incorporated under the Canada Not-For-Profit Organizations Act
  • Home
  • About
  • Advocacy
    • Newcomers
    • National DRD Strategy
    • Newborn Screening
    • Plasma
  • Events
    • Conference Presentations 2020
    • Conference Presentations 2017
  • Resources
  • Member Portal
  • Contact