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Thank you to all who contributed to the success of the NRBDO Comprehensive Care Conference 2017. 
Below you will find summary notes as well as slide decks of the presentations. 

Comprehensive Care Conference
​

Saturday, November 18, 2017
Sheraton Toronto Airport Hotel and Conference Centre, 801 Dixon Rd Toronto

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Graphic Recording by PICTURE Your Thoughts, Charlotte Young.

Download the Full Report (as PDF)
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Comprehensive Care Conference 2017: Presentations ​(Click to download slide decks as PDFs & Audio as MP3s.)

Why Comprehensive Care? + Update on progress in comprehensive care in the  NRBDO - David Page, NRBDO
Slides | Audio
 
Evidence to Support Comprehensive Care/Integrated Care Delivery Model
Chaired by David Page

National Hemophilia Foundation: McMaster Guideline on Care Models for Haemophilia Management – Dr. Menaka Pai
Slides | Audio

Successful Models of Comprehensive Care – Highlighting the Bright Spots in Canada
Chaired by David Page

Saskatchewan Bleeding Disorders Program – Dr. Kelsey Brose
Slides | Audio
John Akabutu Comprehensive Care Centre for Bleeding Disorders – Dr. Bruce Ritchie
Slides | Audio
 
Successful Models of Comprehensive Care - International Models
Chaired by Dr. Stephen Betschel

HAE Care in Italy – Dr. Marco Cicardi
Slides | Audio
HAE Care in the USA – Dr. Marc Riedl
Slides | Audio
International Models of Care for PID – Johan Prevot (via video)
Slides | Audio

Progress in Care in Canada
Chaired by Della Cogar

HAE – Dr. Stephen Betschel
Slides | Audio
PID – Dr. Jacques Hébert (presented by David Page)
Slides | Audio
 
Panel Discussion 
"What makes a compelling case that causes decision makers to champion funding for improved comprehensive care?”
Moderated by Mr. Ryan Clarke, Advocacy Solutions
Dr. Jacob Pendergrast, Hematologist, UHN Red Blood Cell Disorders Clinic
Ms. Sally Balmer, Blood Bank Manager, Toronto General Hospital
Ms. Josie Sirna, Thalassemia Foundation of Canada
Dr. Gina Lacuesta, Immunologist, Nova Scotia Health Authority
Ms. Laura Greer, Vice President, Hill+Knowlton Strategies
Mr. Blair Yakimoski, Manitoba MLA living with HAE
 
Breakout Sessions
Reports Back from Breakouts, Wrap-up & Conference Closing - Jennifer van Gennip

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Graphic Recording by PICTURE Your Thoughts, Charlotte Young.

Network of Rare Blood Disorder Organizations (NRBDO)/Réseau des Associations Vouées aux Troubles Sanguins Rares (RAVTSR)
​is incorporated under the Canada Not-For-Profit Organizations Act
  • Home
  • About
  • Advocacy
    • Plasma
    • Newborn Screening
  • Events
    • Conference Presentations 2020
    • Conference Presentations 2017
  • Resources
  • Member Portal
  • Contact